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First of all, I want to
apologize for taking so long to write this final summary of my LIVESTRONG
Challenge experience, which took place August 24th near Philadelphia.
As
you may remember, the LIVESTRONG Challenge is the Lance Armstrong Foundation’s
signature fundraising event inspired by the hope, courage and perseverance of
Lance and the nearly 12 million Americans affected by cancer. Each year
thousands of people take the Challenge, uniting individuals to stand together to
fight cancer. This was my first year participating, and I chose to ride the 100
mile option. It was both a personal challenge and a way to honor those affected
by cancer.
I learned of the LIVESTRONG
Challenge last year, in the aftermath of my surgery to remove the malignant
melanoma from my chest and as I was becoming very interested in cycling. It
seemed like the perfect opportunity to take my new found love and use it, not
only as a way to show cancer that it cannot defeat me, but to honor the memory
of my parents- both of whom I lost to cancer, and to do something to help
eliminate this terrible disease from the face of the Earth.
So I registered in January 2008
and sent out my first round of emails to friends, family, and coworkers. The
response was tremendous and by the end of the month I was well on my way to my
fundraising goal. As the year went by, I continued to send out updates of my
progress as I worked on building up my cycling endurance, and the donations kept
coming.
It was my goal not just to
finish the Challenge, but to do so strongly and in a reasonable time. My first
ride of the season was on March 23rd and I did my best to ride as often as
possible. I rode into work each shift along the B&A Trail, from Glen Burnie to
Annapolis which would take about an hour and each week I tried to get in a
longer ride that I had the week before.
I was doing pretty good until
July when cycling took a back seat as the birth of our son Nathaniel approached.
As Mary got closer to her due date, I quit riding the bike into work in case I
needed to make a fast getaway. Prior to the day of the Challenge the only ride I
had on my bike in two months was 80 miles on August 9th as I participated in the
Kent County Lions Club's "Ride to See" which took me from Galena to Rock Hall
and back.
Continued...
The lack of riding made would
make it a tough ride, but I was determined not to quit and vowed that no matter
what, I was going to do what I had promised everyone. Looking back, I think it
made the whole experience that much more rewarding for me. I battled cramps for
the last half of the ride and there were many times when I thought I wouldn't be
able to continue. I stopped frequently to catch my breath & stretch. I cried. I
cursed myself. I pedaled on...
You can see the data captured
by my Garmin cycling computer at the following link:
http://trail.motionbased.com/trail/invitation/email/accept.mb?senderPk.pkValue=145659&unitSystemPkValue=2&episodePk.pkValue=6613791
The support for the race was
tremendous. There were police officers at all the intersections and the rest
stops were well staffed. Many of the residents were out and cheering, and one
gentleman was offering free repairs. It just so happened that the first time I
had to stop because of the cramps was just down from his house. Before I knew
it, he was there asking if everything was okay. It meant a lot. Like the day
before, when we went to pick up my registration packet, and I stepped up to the
volunteer who asked for my name to check me in. I told her, she looked down on
her sheet, found my name, scanned across, and let out a warhoop of "Twenty-Eight
Hundred Dollars!!" which was followed by the cheers of all of the other
volunteers there. I had to smile.
That's right. I reached, and
exceeded, my fundraising goal of $2,500. The response from my friends and family
was remarkable. Many people chose to give a lot more than I thought they would.
To those of you who donated, I thank you very much for understanding how
important this cause & event are to me and greatly appreciate your contribution.
Donors can expect a gift package in the near future as a token of my
appreciation. To those who were unable to donate, your words of encouragement
and well wishes served as motivation to get me out on the bike and helped
strengthen my desire to do the absolute best I could in completing the
Challenge.
You can see who donated and
check my final total at last year's fundraising page:
http://philly08.livestrong.org/johnpsmith2
With all of the stops, the ride
took me over eight hours. Not exactly what I was shooting for... I finished just
before the cutoff time, which served as my sole motivation in the last 18 miles.
I pushed myself unbelievably hard to make sure that I finished under my own
power and wasn't picked up by the "broom wagon." As I passed people I shouted
words of encouragement to them. I stopped only briefly, just before coming onto
the campus of the Montgomery County Community College, which hosted the event,
so I could call Mary and let her know that I was almost to the finish line so
she could be sure and see me.
Mary had her own adventure that
day and we asked an awful lot from Nathaniel, who was just over a month old at
the time, but seemed to tolerate the long, warm day well up until the ride home.
It was a long day for us all, but well worth the effort-- Not just our effort,
but the efforts of all those involved.
Participation
at the Philly Challenge was astounding as nearly 5,000 participants and more
than 700 volunteers came out and raised just shy of $3 million. Because of the
fundraising efforts of all participants in each of the four Challenge locations
of Portland, San Jose, Philadelphia, and Austin, the 2008 LIVESTRONG Challenge
Series saw 17,772 participants contribute over $9.7 million to the fight against
cancer!
The net proceeds raised by
LIVESTRONG Challenge participants directly benefit the Lance Armstrong
Foundation and serve to support their mission to help inspire & empower cancer
survivors to live life on their own terms, and help contribute toward cancer
prevention, research and access to screening and care, hopefully making life
better for the more than 12 million Americans currently stricken with cancer.
If you’d like more information
on the Challenge or the Lance Armstrong Foundation you can visit their websites
at http://www.livestrongchallenge.org/ and
http://www.livestrong.org/.
Registration for next year's
event opened today, and I just finished signing up.
This year I won't be asking
anyone for donations, I think it's too much to ask with the state of the
economy. I have toyed with the idea of getting a bike store to donate a bicycle
to raffle off though, so we'll see how that turns out. This year it is more
about a personal goal. I need something to focus on and take my mind off what I
have learned since August.
It seems that cancer can't get
enough of me.
In September, less than a month
after the Challenge I went to my oncologist for a routine follow-up just like I
had done every three months since the surgery. If everything was clear, I would
get to come every four months. It wasn't. As he always does, Dr. Elias checked
my groin, armpits, and neck to feel for swelling in my lymph nodes. This time he
thought he felt a lump under my right arm. He wanted me to come back in two
weeks, so he could check again.
I was worried, but not overly
worried because when I reached under my arm I couldn't feel anything. I kept
feeling under my arm as the days went by. The weekend before we were due back to
the doctor's office Mary & I were watching an episode of "House." The fictional
doctor was diagnosing a patient in Antarctica via webcam. He was guiding her
through a procedure when she felt a lump under her skin. Mary wondered if I
could feel anything… I scoffed and said "No!" knowing I had just felt under my
arm a couple days before. I reached under my arm again, but this time I could
feel something. And not only could I feel it, but when I raised my arms over my
head, I could see it, the size of a walnut.
We returned to the doctor on
October 8th. It was a short visit. He told me that he was sure that it was my
melanoma that had spread. They asked me when I wanted to schedule the
lymphadenectomy. I answered 'the sooner the better.' They booked me for the
morning of the 13th and sent me to the hospital's lab for blood work, then up
the road for a PET/CT scan. It was a long day. Nathaniel is a remarkable baby.
He was sooo good…
The surgery went well. The
doctor said that the PET/CT scan was clear except for the one area, and that it
looked like it was just one lymph node that was affected. I wondered why it
spread when my original Sentinel Lymph Node biopsies were clear. He explained
that the test sometimes fail to show anything even though it was there. They're
working on a better test, using Stem Cells. They added my case to the list of
ones to retest. With any luck, my misfortune will help someone in the future.
I went back to him on the 22nd
and everything was healing well. I've continued to heal well and will return to
work on December 8th. It will be good to get back. The plus side is that I've
gotten to spend some wonderful time with my son.
Hopefully this will be the end
of it... Melanoma is the deadliest skin cancer. If it is caught early, before it
gets too big, then removing it typically solves the problem. If it goes too
long, gets too big and spreads then survival rates go down dramatically- 25-60%
(5yr) for Stage III, which is what I am now. There are no approved treatments
beyond surgery. Chemo/Radiation are not effective...
They offered me the biotherapy
Clinical Trial again. The last time I decided not to do it. The trial lasts two
years. For the first year I would have to give myself daily injections of
medication that is meant to boost my immune system. Three times a month I would
have to get blood drawn so they can track the results. Each month I would have
to go to the doctor's office to get injected with a vaccine that was made from
my own tumor. The idea is to teach my immune system to fight and kill the cancer
cells. It sounds good in theory. I dread having to do it. The side effects are
supposed to be minimal, tolerable, and a whole bunch of other things. I feel
great right now. Even the mildest side effect, the feeling of being "run down,"
would make me feel worse than I do right now, and I despise having to feel
"sick."

I worry how it will affect my
desire to do the things I want to do, if it'll make me feel like not riding my
bike, if it will adversely affect my ability to do my job. I don't want to ask
my co-workers to pick up my slack. I don't want them to have to cover for me. I
don't exactly have the type of job where I can just "take a break" if I feel
like I need one, as the clinical trial nurse suggests, and I don't want that
type of job either. In short, I don't want cancer directly or indirectly through
the treatment of it, to run my life and it tears my insides out to think that it
is going to.
Nor do I want cancer to make
Nathaniel grow up without a Dad, and that fear trumps all the others. So I'm
going to do the trial anyway because it's the best option I've got. I'm going to
stop frequently and catch my breath. I'm going to cry. I'm going to curse
myself. And I'm going to pedal on...
Thanks again for your
generosity this past year and understanding how important this cause and event
are to me. Together we made a difference! I'll be sure to keep in touch and let
you know how things go in 2009.
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